DARE Senior Programme Manager

Job Description

Post: Senior Programme Manager, for the UK Trusted and Connected Data and Analytics Research Environments (DARE UK) Programme (Phase 1: Design and Dialogue)Location: HDR UK Offices, Health Data Research UK, Gibbs Building, 215 Euston Road, London, NW12BE. As a result of the pandemic, staff are currently working remotely. All HDR UK roles are primarily based at the London offices, however we are flexibly working across a number of geographical locations. Travel will be required to HDR UK locations and partnerorganisations.Contract: Full time, 12-month fixed term contractReporting to: Dare Programme DirectorAbout Health Data Research UKHealth Data Research UK (HDR UK) is the national Institute for data science in health. Our UK team of experts develop and applycutting-edge data science approaches to clinical, biological, genomic and other multi-dimensional health data to address the most pressing health research challenges facing the public.Our mission is to make game-changing improvements in the health of patientsand populations through data science research and innovation.For the first time we are bringing together the UKs population-wide health data assets, enabling specialists across academia, industry and healthcare to unlock knowledge and deliver new insightsfrom molecules to humans. By undertaking research at scale, across a population of up to 67 million people, we have an unrivalled opportunity to use data to the highest ethical standards to drive breakthroughs in medical research. This unleashes the potentialto improve the way we are able to prevent, detect and diagnose diseases such as cancer, heart disease and asthma.At Health Data Research UK, we employ talented individuals who bring their own unique skills and experience to support the vision and benefit thewhole team.About ADR UKAdministrative Data Research UK (ADR UK) is a partnership of government and academic groups, led by a team within UKRIs Economic and Social Research Council (ESRC), working with UK government departments and devolved administrationsto create linked research datasets from administrative sources, then making these available to researchers via the ADR UK Trusted Research Environment (TRE) network.Good government policy - policy that solves social and economic problems and improves lives- needs good evidence. But good quality evidence is expensive and time-consuming to produce, and evidence from academic research can also have a different focus from what government needs most to make policy decisions and deliver effective services.ADR UKsmission is to solve both these problems by transforming the way researchers access the UKs wealth of public sector data. By joining up the abundance of administrative data already being created by government and public bodies across the UK and making it availableto approved researchers in a safe and secure way, we are enabling vital research that has the potential to lead to better informed policy decisions and more effective public services, in areas from improving education and healthcare to tackling crime.ADR UKswork plays an important role in bridging the gap between government and academia, enabling government policy to be informed by the best evidence available, and putting us on the path to a future in which the true potential of administrative data to improvesociety is realised.About UKRILaunched in April 2018, UKRI is a non-departmental public body sponsored by the Department for Business, Energy and Industrial Strategy (BEIS).UKRI brings together the seven disciplinary research councils, Research England, whichsupport research and knowledge exchange at higher education institutions in England, and the UKs innovation agency, Innovate UK, to create an independent organisation with a strong voice for research and innovation, and a vision to ensure the UK maintainsits world-leading position in research and innovation. More information can be found at www.ukri.org.DARE UK Programme (UK Trusted and Connected Data and Analytics Research Environments)The formation of UK Research and Innovation (UKRI) has provided an opportunityto develop a collective and coordinated vision for the research infrastructures in the UK, and specifically to create a coherent state-of-the-art national Digital Research Infrastructure that will enable UK researchers and innovators to harness the full powerof multi-dimensional data, modern digital platforms, tools, techniques and skills.The UK Trusted and Connected Data and Analytics Research Environments programme (DARE-UK) aims to deliver a novel national federated digital infrastructure to establish the nextgeneration of Trusted Research Environments (TREs) (i.e., secure, cloud-enabled environments for advanced analytics). It will: Define how organisations can best use data for public good whilst protecting sensitive information about individuals. Define thetechnologies, combined with changes in wider governance, policy and business frameworks, that could enable the sharing and use of data in a privacy-preserving manner. Support researchers to safely store (as and when required), but mainly process, curate, linkand analyse potentially identifiable/sensitive data (generally, unconsented FAIR ified data from different modalities/sources) at UK scale; bring advanced analytical algorithms (e.g., AI/ML algorithms) to the data export software/algorithms and analysesresults developed and produced within this environment.DARE UKs scope would include all research conducted by UKRI Councils that uses, or anticipates use of, large scale personal/sensitive data related to social, biomedical and environmental science relevantto humans. The programme will review existing infrastructure within each of the Councils, identify opportunities for joint-working, and novel approaches and innovations. It is envisaged that the DARE-UK programme would be delivered in three phases, with phasestwo and three dependent on the conclusions from phase one and the securing of the funding:Phase 1: Design and Dialogue (~13 months, July 2021 - July 2022)Phase 2: Build, Test and Establish (~12 months, August 2022 - July 2023)Phase 3: Deliver, Optimise andFederate (~35 months, August 2023 - May 2026)The first phase (Phase One - the foundational phase) of delivering to UKRI digital ambitions focusses on investment in a portfolio of high priority, timely and community-validated digital infrastructure requirements,based on a prioritisation exercise conducted by UKRIs Councils.Purpose and responsibilities of the postMain ResponsibilitiesAs the Senior Programme Manager for DARE UK, you will be accountable to the DARE Programme Director and responsible for the successfuldevelopment and delivery of the entirety of the foundational Phase 1: Design and Dialogue. Work with the DARE UK joint oversight group, to ensure identified key programme tasks are completed on time and new activities continuously planned in. Project managespecif